So almost a month ago I received the call I have been waiting for. My pump was at the U of U diabetes clinic waiting for me to come get it.I wonder if this is how people feel when they are waiting to adopt a baby? There was just so much relief when after all of the insurance papers, phone calls, money, stress and time. Finally my new constant companion was coming home!
The best part was that my CGM (continuous glucose monitor) had also arrive earlier than anticipated! So I guess it was like adopting twins! Twins that make your life easier which is probably some sort of oxymoron.
I went and saw Dez and like normal I had two lovely pharmacy interns doing their rotation in endocrinology and so they got to sit in on the show. I guess I could say no but I think the more people have to see what it is like the more understanding is spread around. They were able to put on demo pumps while I did. They just watched as I put in my CGM. Those are a bit too expensive to demo.My appointment was at 9am so I thought I would put it in and be off. Not the case. They HAVE to (for insurance reasons) go over every button/function/noise that could happen with the pump/CGM. 4 hours later I was all connected and my life as a part bionic woman commenced!
My pump is smaller than the one I demo-ed. It is the newest one on the market which is one of the reasons it took so long to get; it was on back order and once the new one made it past the FDA they stopped selling the old ones. I chose the color smoke. Which actually led to some controversy up at the U with Dez and the interns. They said they would all have gotten pink or purple. I said that I wanted on to blend in. They said I should want it to stand out. I told them I was hoping I would be confused with a doctor with a really old school pager. Then they understood, I am not yet ready for the world to label me diabetic by the thing that is attached to my hip.
My pump is a MiniMed 522. It holds up to 180 units of insulin. Which means I change my insert site every 3-4 days depending on my insulin intake. My CGM is also by Medtronic and I can't tell you how much I love it. There aren't words to describe. Just like real love it hurts sometimes and also gets sticky and makes me bleed. Well I guess love doesn't make me bleed... I might be confusing that with something else... I just don't know what.My CGM is suppose to get changed every 3 days but Dez said every 6 or so is fine. Thank goodness because I don't think I could handle it I have only had it a month and so inserting it is still a bit nerve racking.
So this morning I had to change my pump site and I had a freak out moment. After I inserted the reservoir I pushed the button to fill the tubing and see if there was any kinks or other problems with insulin delivery before I put it in my body. The pump started to vibrate and read NO DELIVERY. I panicked pulled out the huge manual and found the page with that troubleshooting message. Turns out I just needed to pull out the reservoir and re-rewind (if you can do that) the pump and start over. Not a big deal. So far that and accidentally pulling out my site from my leg have been my only problems.
I always worry that I am going to mess it up and somehow die. I know, extreme. So I don't even know if Chad knows this but I usually start to have a conversation by text before I start switching sites because then if I don't answer after a while he will call and if I don't answer eventually he will call someone to check on me. I am a thinker. :)
So there are many parts to my pump and CGM. I think I will walk you through it in pictures.
People always seem to want to understand how the sites go in me but seem to nervous to ask. Maybe they don't like needles or maybe they think it is personal. I have had, in total, just at my doctors alone 4 interns 2 male 2 female and Dez watch me do insert sites. So if anyone is around when I am doing it feel free to stay and watch. Lately I have been putting my CGM on the top of my bum so maybe just the pump site would be best...

This is what my counter looked like the first time I switched out my sites. There are a lot of parts involved. Too many maybe...

This is what I need to start my insulin pump site change.

This is my insulin vial and the blue piece has a needle that you put in the top of the vial then push the plunger and fill up the reservoir with insulin and the twist the blue part off and the plunger also twists off. Leaving...

I hook the tubing to the reservoir the tubing then gets put in the thing that helps me stab myself like so...

So the thing rests on my skin I push the button down it pushed the needle into my skin and the sticky stuff presses on the outside.

This is what is left after I pull the big blue thing off. This blue thing is the needle!! I pull that out and these are what are left.


After that I am ready to bolus (give insulin). Onto my CGM...
This is the charger that my CGM transmitter (the thing that looks like a seashell) hooks to. I leave it on there for about 20 minutes before I hook it to the site.

This is the device I hook the needle to and then pull the spring back and push the top button to have it stick in my skin.

After the site is in I pull the needle out. It is a much smaller gauge (which means bigger) than the other site. The needle goes in on a 45- 60 degree angle so not straight in.

This is what the site looks like before I hook the transmitter to it. It does bleed a little bit every time but that is totally normal.

This is what the whole unit looks like. It gets covered with a tape like film that keeps it stuck to me. This whole unit is waterproof. I can shower, swim or fall in a lake with this stuck to me and it will be fine. The pump is water resistant. So splash proof. I have to unhook it to shower, swim or fall in a lake.

I'm not planning on falling in a lake. :)
So diabetes has always been time consuming. Now it is space consuming! This is my drawer unit of diabetic supplies. Of course the insulin in in the fridge. I just wish all my receipts and insurance papers would fit in here too!! Sorry Chad, looks like I am coming into this with lots of baggage. :)